'A slow death': Ontario woman with rare disease begs province to cover life-saving drug costing thousands

'A slow death': Ontario woman with rare disease begs province to cover life-saving drug costing thousands

Advertisement Nouma Hammash can be seen above holding her newborn niece. (Handout provided by Hammash) An Ontario woman is urging the government to reconsider insurance eligibility for a drug that could save her life but costs hundreds of thousands of dollars a year. Toronto resident Nouma Hammash, 39, grew up in the United Arab Emirates. Diagnosed with spinal muscular atrophy (SMA) at a young age, she has lived most of her life losing the ability to utilize her muscles. “It’s a slow death,” Hammash told CTV News Toronto during an interview over the phone. SMA is a rare genetic disease affecting the body’s motor neurons — nerve cells that control voluntary muscle movement. Over time, the muscles weaken and shrink. “SMA causes progressive weakness in the arms and legs, progressive …
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