'A slow death': Ontario woman with rare disease begs province to cover life-saving drug costing thousands
Nouma Hammash can be seen above holding her newborn niece. (Handout provided by Hammash)
An Ontario woman is urging the government to reconsider insurance eligibility for a drug that could save her life but costs hundreds of thousands of dollars a year.
Toronto resident Nouma Hammash, 39, grew up in the United Arab Emirates. Diagnosed with spinal muscular atrophy (SMA) at a young age, she has lived most of her life losing the ability to utilize her muscles.
“It’s a slow death,” Hammash told CTV News Toronto during an interview over the phone.
SMA is a rare genetic disease affecting the body’s motor neurons — nerve cells that control voluntary muscle movement. Over time, the muscles weaken and shrink.
“SMA causes progressive weakness in the arms and legs, progressive …
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